The British Dupuytren’s Society….
provides support and information to people affected by Dupuytren’s Contracture, Ledderhose Disease and related conditions. Our goal is to raise awareness of these conditions, improve knowledge of the treatments available and encourage research into their prevention and treatment.
We are running a survey with the International Dupuytren’s Society and the Dupuytren’s Foundation to try and get some statistics on Dupuytren’s and Ledderhose Disease. You can become a member by entering a few simple details here.
The British Dupuytren’s Society is a UK charity founded in 2011 as a patients’ organisation, supported by medical professionals, and working alongside the International Dupuytren Society (IDS).
The Board of Trustees consists entirely of volunteers: three of whom are Dupuytren’s patients, and two Doctors one of whom is a surgeon. The patient Trustees have personal experience with Dupuytren’s including mild Ledderhose, treatment via radiotherapy in Germany and the UK, and repeated surgery in the UK. As volunteers we meet regularly via Google+ to discuss the charity, its status, work in progress and new suggestions for projects. The Society also has a panel of volunteer Doctors acting in an advisory capacity.
The British Dupuytren’s Society was founded in August 2011. Our first step was to create our Constitution and Board of Trustees. We are now registered with HMRC for tax-exempt status as a charity, but since our financial turnover does not meet the minimum requirement we cannot yet apply to become a registered charity. Read more…………