Get in touch – we’d love to hear from you! And if after browsing our website you still have questions, you are now at the page you need!
- For information on Dupuytren’s disease or frozen shoulder, or general enquiries, contact our chairperson Anna
- For information on Ledderhose disease contact our trustee Gary
- For information on Peyronie’s disease contact our trustee Birgir
We do try our best to answer as soon as we can, it may be a few days though so don’t worry if you don’t get a quick reply! A lot of questions can be answered by checking our website, especially under Treatment the page with doctors, clinics and organisations. You can also contact us via Facebook or Twitter (@Dupuytrens). We do not have a charity phone line at this stage so advise is given via email or Facebook. To receive our newsletter sign up here. To become a member of the society please leave your details on this page.
Please note The British Dupuytren’s Society is unable to give individual medical advice. Please review our website for treatments available for your condition, and the treatment page for some names of doctors and clinics. These listings are not comprehensive and in all cases you should contact your GP, local PCT or commissioning group.
Other useful pages
There is a busy and active search-able forum covering Dupuytren’s and Ledderhose on the International Dupuytrens Society website, which is also used by members of the British Dupuytren’s Society. This forum has sections for several different languages.
For Facebook users there are some active closed groups you can join. When you first go to the page you need to click on ‘join group’ and you will be accepted usually within a few hours. They are both in English but people from all over the world join and post, and a lot of members do try to read and answer in any language necessary.
We run the Dupuytren’s, Ledderhose and related conditions Facebook group, where patients can discuss their problems in a more private setting as it is a closed group. We get people from all over the world sharing their stories and asking questions, and aim to answer or refer to someone who can answer, no matter where you live. We have doctor members on the group who can help if needed.
For Dutch speaking patients there now is a separate Facebook group set up independently but supported by the British Dupuytren’s Society.
There is also the USA based Dupuytren’s Disease Support Group (DDSG), which started in 2015 with the aim of helping patients explore and discuss all treatments possible for Dupuytren’s, Ledderhose, Peyronie’s and related conditions. Their open Facebook page tells of any upcoming Facebook events and gives a lot of general information and you can also join their closed group. They have several well-known doctors as members who will offer advice when asked, and arrange ‘coffee talks’ regularly where a specialist on a certain subject tells a bit about their work and answers questions from group members.